In both disenfranchised grief and resurrection, it is hard to know where you are. And often times, it feels irrelevant. Post life altering traumatic loss Road is perpetually foggy, no doubt. But is having some sort of proposed road map really going to alter the slog of now? (more…)
And the confounding abyss in between
Walking into my first social outing since a virus attacked my autonomic nervous system 5.5 months ago, I wasn’t sure what to expect. Though much less than a few months ago, my nervous system still tends to over assimilate sound and does not adjust smoothly to darkness. Not to mention I’m still dealing with a slowly waning level of dizziness and lightheadedness. And then there’s the fertile world whose presence is, of course, immeasurable. (more…)
Scenes from when it works, Illuminations on what goes wrong
Today I am dedicating my blog to National Infertility Awareness Week and to the launch of Justine Brooks Froelker’s latest book The Mother of Second Chances, based on her blog Ever Upward releasing on April 17th. For five weeks 25 amazing women will share their stories of infertility and loss as part of this incredible blog tour, because together we can shatter the stigma.
Click here for the scheduled list of participants and posts, running all of the way from March 27 – April 28!! We would love for you to participate by sharing these posts far and wide. We’d especially love to see your own broken silence by sharing your own infertility story using the hastags: #NIAW, #infertility and #EverUpward.
I recall walking out in the world during the two years following my fertility treatments feeling like the teacher from Charlie Brown – voiceless.
The portrayal of even a smidgen of my experiences brought forth endless platitudes. Blank stares and silence filled the space where ceremony and ritual, verbal acknowledgements (try I’m so sorry for your loss) and casseroles are supposed to be in the event of that which is world shattering.
Close to 20% of the female population aged 45 and over in the United States (and in many other countries around the world) does not parent. It is likely the majority of this population is child free not entirely by choice, hopefully one day soon there will be an actual statistic available. IVF has now been around for 40 years, providing many of us with a towering pile of failures. And yet the human conversation still lags far behind reality.
I was missing you on the day things crumbled. My cart seemed so bare two days before Christmas as I struggled to procure the few things your Dad and I needed, trying to make the best of our holiday for two we felt no urge to celebrate.
I didn’t know then why Fairway Market was spinning and going black or why my heart was flailing about or why the vision of the woman cuddling her toddler in the cheese line suddenly felt no less barbaric than the act of trying to exist.
All I knew then was that I missed you. What I know now is that the towering experience of missing you was layered with a malfunctioning nervous system and I think back on that space in time with sorrow. And with a pointed acknowledgement of human fallibility. That space in time when I sat in my car and in my body spinning out of control trying to fathom your absence. An impossible feat under normal circumstances, an utterly defeating experience in the presence of unregulated blood pressure and minimal blood flow to the brain.
I dialed 911 as my heart relentlessly beat out of my chest. (more…)
In the face of involuntary childlessness, grief and recovery
How am I going to live THIS life in THIS world?
It’s one of the questions that has adhered itself to every aspect of my being since stopping fertility treatments three years ago. It’s a question that has become only more throbbing as I make my way back out into the world and initiate my life rebuilding process. It’s a question that is unavoidable. And how could it not be? My experiences trying to conceive, the physical absence of my children and our loss of parenthood colors everything.
I’m not alone in this. When one has come through and out of the wanting of parenthood in any way shape or form, finding themselves on the other side of their dream or pursuit or hard work without the desired children in tow, we are all in some version of a related boat.
Thoughts, feelings and instincts on this question percolate in our systems. We organically, if not subconsciously, become silent, unseen coping skill factories, working overtime to generate a new life that makes sense to us, a new social normal and perhaps most of all, self-preservation.
I was recently made more consciously aware of part of my process when I read Cathy’s latest post, Are You Doing More Than Your Fair Share of Emotional Labor? over at Slow Swimmers and Fried Eggs (Thanks, Cathy!). Realizations rising to the surface were of course prompted by the writing and investigating of fellow infertility survivors because where else would they come from? There’s no context out in the wider world acknowledging the plight forward for those of us who wanted children but couldn’t have them, even most if not all infertility support groups are tone-deaf towards this journey. (more…)
A doctor finally gets it right
I have two major biochemical imbalances that caused chronic and sometimes suicidal depression between the ages of 17 – 29. They were finally diagnosed and pretty well treated by the Pfeiffer Health Research Institute via a prescribed nutrient therapy program. While I should normally get re-tested every year or two, for me, this was just one more thing that got pushed to the side during fertility treatments and the subsequent loss of our children.
I think most if not all of us have situations where our infertility collides with challenges and crisis we faced prior. Those experiences can be internal, or more external, as it was when I was driving to my first Pfeiffer appointment in four years about a month ago. I was pondering how I was going to explain the infertility/childlessness trauma/PTSD amid grief symptoms amid symptoms of my biochemical imbalances with a dash of peri-menopause thrown in while marinating in that all too familiar not knowing if I was going to be seen, heard and taken seriously. (more…)
Socializing With Fellow Child Free Not By Choicers
I felt my whole body present and peaceful before I opened my eyes. Light filtered in through our hotel window which faced Pittsburgh’s Point State Park, just to the side of Heinz field.
“I feel, like…..good” I stated to my husband (mornings for me have never exactly been a time of intellectual prowess). However, in the noticeably less plowing and more functional third year of grieving and mourning the loss of one’s children to infertility, feeling good still rates as news.
“I can’t quite explain it….” I meandered as I stretched my body and gulped in as much of my good feeling as I could, reflecting on our weekend in “the Burgh” with fellow blogger Kinsey. “I think I might feel…normal……..which is of course weird.”
The precious few times I’ve been asked to site the toughest aspect of what I go through, aside from not getting to have children, I always answer “the social ramifications”. Hovering in the backdrop of my response is the shaky, filmy sense that even I don’t yet really know what that means. Not fully, anyway. (more…)