Sweet Words

A doctor finally gets it right

I have two major biochemical imbalances that caused chronic and sometimes suicidal depression between the ages of 17 – 29.  They were finally diagnosed and pretty well treated by the Pfeiffer Health Research Institute via a prescribed nutrient therapy program.  While I should normally get re-tested every year or two, for me, this was just one more thing that got pushed to the side during fertility treatments and the subsequent loss of our children.

I think most if not all of us have situations where our infertility collides with challenges and crisis we faced prior.  Those experiences can be internal, or more external, as it was when I was driving to my first Pfeiffer appointment in four years about a month ago.  I was pondering how I was going to explain the infertility/childlessness trauma/PTSD amid grief symptoms amid symptoms of my biochemical imbalances with a dash of peri-menopause thrown in while marinating in that all too familiar not knowing if I was going to be seen, heard and taken seriously. (more…)

Future Generations: Nine Things Young People Should Know About Human Reproduction

When it comes to infertility and involuntary childlessness, everyone needs to go back to school.

The second day of our little North Fork of Long Island July getaway started out with a full delicious breakfast, and a bike rental that went off without a hitch.  Perfect eighty – degree weather and much pedaling brought us to our first winery stop in the early afternoon.

Sipping on a succulent sparkling rose, my husband and I found ourselves seated in proximity to what for us is a past life of sorts – a group of eight youngsters celebrating an engagement.  I enjoyed their effervescence to the hum of my internal groan as they yammered on about how many kids each of them wanted and were going to have.

The disturbing aspect of all this you ask?  What was missing.  (more…)

The Need For a Tribe

The Global Sisterhood Summit Part 1

“It’s just so damned basic, THAT’S why it’s hard to iterate.”

I was musing to my husband as I attempted to compose an e-mail to my yoga teacher training colleagues.  I was on my way to Vancouver for the first known formal gathering of women who wanted children but couldn’t have them and desired to share why I was not going to be in yoga teacher training attendance that weekend.   But, like all other communications these days it was proving to be a challenge.  (more…)

#StartAsking Reproductive Medicine to Prioritize Patient Care

Dear Reproductive Medicine,

I’m one of your patients.

I went through five IUI’s (all done with injectables), one hysteroscopy/laparoscopy surgery for stage 3 endometriosis, four fresh IVF cycles and one frozen.

I also, during my four year trying to conceive trek, unexpectedly dealt with PTSD that went undiagnosed for quite some time and entailed panic attacks, many of which took place in your waiting rooms.

My husband and I have now embarked on the third year of grieving and mourning the loss of our children, notably all by ourselves.  And no, we don’t consider our departure from reproductive medicine and the pursuit of a family with children a “choice” upon which our grief can be blamed.  It was, rather, the only sane and responsible action to take under the circumstances.

Yes, I’m one of your patients.  A patient who, two years and three months out of her final treatment is disturbed by many aspects of the care she got….and didn’t get…..while in the care of reproductive medicine.  Prompted by this year’s National Infertility Awareness Week theme, it’s time to #StartAsking. (more…)

#StartAsking For Support From Family

Guest Post – My Mom

I’ve been noticing that it seems our family members need to speak on our behalves a lot more.  I envision a future where people speak up for family members dealing with infertility as much as they do for any of life’s other crisis and unexpected heartaches.

I know that eliciting support from family is not always feasible.  Not everyone has a parent, parents or siblings within reach, due to death and other circumstances.  And, since we have about as much of a choice of who our parents are as we do over our reproductive situations (please read: none!), some of us are dealing with more astronomical levels of crazy than others.  Please know that I abide with these circumstances too.

The path to incorporating the hardship of treatments, the losses brought by infertility and the needs that arise because of them into my extended families’ reality has not been an easy one.  But we all persisted and I’m glad we did.  It touches on a spirit present in some of my other posts, which is that one doesn’t matter less in any given equation because they couldn’t have children easily or at all.  So, with that said I’ll turn things over to Mom. (more…)

#StartAsking Ok, I’ll Ask the World

7 Things To Know About Infertility

 

Dear People in the World,

In the spirit of this year’s National Infertility Awareness Week #startasking theme, I’m asking you, people in the world, heck, I’m imploring you, once and for all to please take the disease of infertility seriously. (more…)

Infertility Feature in November’s Redbook Magazine

And I’m in it….

Wow. I never presumed my last post on the way infertility has re-shaped my own personal perspective would resonate. Seems I had been feeling alone and isolated in this too. Thanks for all of the shares and comments. I’m hoping this perhaps leaves us all feeling a bit more centered in and aware of where we are – so not an easy thing – and especially validated on this tough, tough journey we are on.

I tried to write about this subject back in July (sans Huff Post Parents provocation) and it came out as a bunch of indiscernible garble, so, I let it go. I wasn’t there yet. Since then I’ve been struggling a lot with understanding how my experiences of the last five years have changed me and the way I now see life and relate to other people. This is not an easy thing to comprehend and then process when you never see yourself reflected out in the world – not in social conversation, rituals, acknowledged losses and rites of passage, or in the media anywhere.

When it comes to grieving and healing, a lack of available resonance increases one’s workload, and time in the trenches, exponentially.

Hopefully, that’s starting to change.

The November issue of Redbook Magazine did a feature on infertility. And I served as the source for the section that reported, FINALLY, on letting go of the dream of motherhood in the face of infertility treatments NOT working. (more…)